Like every other disorder,
the management of Cerebral palsy can be tough on families. Younger children
find it difficult to understand behaviors. With older siblings, it can release
multiple feelings, such as anxiety and, loneliness.
I
love meeting people who share similar feelings and experiences. I also love to
find out how they cope with their Special needs family members.
Although
my subject of focus has a brother with cerebral palsy and I have a brother with
Autism, there are still some similar feelings and experiences.
Just
like every Neurotypical sibling out there, Helen is somewhat grateful for the
experience.
Ever since I was young, I knew my little brother was not like
the other kids. I never knew what the name of the disability was, and not until
when I was of age, I became so curious I wanted to know more about it. Each
time, my family came for visit to my school, my friend would question me about
my brother, especially about his head. I will answer them saying that’s how he
is. I later found out it was cerebral palsy.
My brother is so loved by my family. My family and I have
learned to support him since day one. We always take him to his physiotherapy
sessions, play together, read to him, and assist him with his assignments.
We give him all the attention he needs. He is now done with
primary school and is now in secondary school.
Like I always say as his name implies victor, he has always been
victorious. Growing up hasn't been easy for him, he was always in the hospital
for his physiotherapy sessions and has always been subjected to taking his
medical drugs all his life. But he is still challenging himself to do greater
things. Like he said he wants to be an engineer.
I have learned to appreciate the small things in life and never
take anything for granted. Having a sibling with special needs has taught me
lessons about compassion, empathy, and acceptance.
It
is beyond beautiful that she feels this way. Having a sibling with special
needs teaches you a lot of things. In my case, it is patience, for Helen, it is
empathy and acceptance.
I
say that you have a sibling with special needs, you are so special. Not
everyone can do what you do- your patience, love, and care.
LEARN ABOUT SIBLING SUPPORT GROUP "YOUR SAFE SPACE"
It’s
rare. Don’t let anyone tell you that there is nothing special about your child
or sibling. There is a lot.
If
you have a sibling with cerebral palsy, just being there for them and inclusion
will do wonders for their self-esteem and image.
Remember,
they are like other children and still crave friendship and playtime.
Watch this video on Cerebral Palsy
Most
importantly, these individuals live fulfilled lives and should not be judged
based on their disabilities.
As
a neurotypical person, you need to be aware of their situation and make plans
for inclusion.
Honor
this day by finding out more.
Stay
kind and understanding always.
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