CEREBRAL PALSY: NEUROTYPICAL SIBLINGS DOING THE BEST!

Like every other disorder, the management of Cerebral palsy can be tough on families. Younger children find it difficult to understand behaviors. With older siblings, it can release multiple feelings, such as anxiety and, loneliness.

I love meeting people who share similar feelings and experiences. I also love to find out how they cope with their Special needs family members.

Although my subject of focus has a brother with cerebral palsy and I have a brother with Autism, there are still some similar feelings and experiences.

Just like every Neurotypical sibling out there, Helen is somewhat grateful for the experience.

Ever since I was young, I knew my little brother was not like the other kids. I never knew what the name of the disability was, and not until when I was of age, I became so curious I wanted to know more about it. Each time, my family came for visit to my school, my friend would question me about my brother, especially about his head. I will answer them saying that’s how he is. I later found out it was cerebral palsy.

My brother is so loved by my family. My family and I have learned to support him since day one. We always take him to his physiotherapy sessions, play together, read to him, and assist him with his assignments.

We give him all the attention he needs. He is now done with primary school and is now in secondary school.

Like I always say as his name implies victor, he has always been victorious. Growing up hasn't been easy for him, he was always in the hospital for his physiotherapy sessions and has always been subjected to taking his medical drugs all his life. But he is still challenging himself to do greater things. Like he said he wants to be an engineer.

I have learned to appreciate the small things in life and never take anything for granted. Having a sibling with special needs has taught me lessons about compassion, empathy, and acceptance.

It is beyond beautiful that she feels this way. Having a sibling with special needs teaches you a lot of things. In my case, it is patience, for Helen, it is empathy and acceptance.

I say that you have a sibling with special needs, you are so special. Not everyone can do what you do- your patience, love, and care.

LEARN ABOUT SIBLING SUPPORT GROUP "YOUR SAFE SPACE"

It’s rare. Don’t let anyone tell you that there is nothing special about your child or sibling. There is a lot.

If you have a sibling with cerebral palsy, just being there for them and inclusion will do wonders for their self-esteem and image.

Remember, they are like other children and still crave friendship and playtime.

Watch this video on Cerebral Palsy

Most importantly, these individuals live fulfilled lives and should not be judged based on their disabilities.

As a neurotypical person, you need to be aware of their situation and make plans for inclusion.

Honor this day by finding out more.

Stay kind and understanding always.

Comments

EASTER SUNDAY- THE DAY JESUS ROSE FROM THE DEAD AND THE DAY I THOUGHT OF SUICIDE

I believe in the opinion that everyone has thought of suicide, and you can argue, but you know deep down, something may have happened to you to make you say, “I’m going to end it all.” But let’s talk about something that happened to me. Now, this article is not to scare you, or to make me seem easily influenced by the other voice. It is to remind you of three things. One, bottling emotions is not good. Two, the role of caregiving for someone with a disability is not something that is your sole responsibility. Three, the devil is a bastard. Okay, let's get into it. If you’ve been following my space, you probably know that I have a brother with Autism. As much as it is a beautiful experience, it is very scary. Whenever my brother is coming to the house from school, we ‘ Tobi-proof ’ the house, meaning that we have to hide some things, lock some things up, and it is quite a lot. See also: Choosing Love as a neurotypical sibling Long story short. I had a meltdown on Sunda...

CREATING A COMMUNITY OF AWE-TISM ADVOCATES: FIRST TIME SPEAKER!

Last year, I prayed that I would be part of the speakers for the GT-Bank Annual Autism Programme and I got an opportunity! As a chronic overthinker and scaredy cat, I began to worry if I would be able to do it. Everyone knows Public speaking is not my best forte. I couldn’t raise my voice in a group of ten, why would I be able to do it with over 300 people in the room and more virtually? Despite the voices in my head and my tailor trying to mess up my life the day before, I promised myself that I would let nothing bother me. Nothing. This year’s theme is creating a community of Awe-tism Advocates and I couldn’t love it much more. This was the exact one I wanted to go into. To be honest, I cannot seem to understand how GT bank had been able to plan something so perfect. Everything was perfect for me from the dance and drama presentation by Corporate dance world, to the end of the two-day conference. I was part of the panel discussion "It takes with a village", this mea...

Empower Voices for Autism

Why is it very important to empower voices for Autism? There it is! Gt Bank has done it againnnn… It’s one thing when you’re doing everything you can to be aware of a neurodevelopmental disorder, it’s another to make sure others can be aware. This is my fifth year attending the GT bank Autism conference. Check out the past year’s post: Creating a community to Awe-Tism Advocates And every year I go, I am so empowered and also filled with hope. Hundreds of people attend to know more about autism, to find ways how they can help their children or students. This year’s theme focuses on inspiring confidence in individuals with autism to reach their full potential in their preferred sector, whether art or music. I’ll start with the dance drama which was… Amazing! Mind you, I’m going to be using that term a lot. The actor in the stage play was a very talented photographer. The moral of the riveting story was that people would always try to take credit for wh...

Special Education!

It is a hard pill to swallow but children with developmental disorders are often not recognized in society. Yes, I said it! Special education is a unique educational program for students who have mental, physical, and emotional challenges. These children require special and unique teaching approaches. Sometimes, these approaches take place outside a regular classroom setting. Special-needs children refer to children who have some sensory challenges. Some of these challenges are common to children with Autism spectrum disorders, Down syndrome, Cerebral palsy, hearing impairments, developmental delay, intellectual disability, emotional disturbance, visual impairment, and much more. It’s unfair that children are placed in regular classrooms and are forced to learn the way neurotypical children are. My brother once attended a school for neurotypical children. This was a time when we weren’t sure about his diagnosis. I could tell that it was hard fo...

Diary of a Beautiful Special Needs Sibling

Search This Blog