Diary of a Beautiful Special Needs Sibling

  It’s the international awareness month of Down Syndrome, and what does that mean? Spreading awareness on the condition, duh! Down syndrome, or Trisomy 21 , is a genetic condition when an individual has an extra copy of chromosome 21.  Usually, humans have 46 chromosomes; in the case of Down syndrome, there is an additional copy of chromosome 21, resulting in 47 chromosomes. This extra chromosome causes developmental and intellectual delays, as well as specific physical characteristics that may include Slanted almond-shaped eyes, A protruding tongue, Short stature, and more. I’ll tell you something I told my mom,” representation matters!” One way representation can be achieved is through screen time and movies!  We need more media on special needs- books! Movies! Animation! Everything!  Special needs-centered movies help with education; they often depict the strengths, talents, and capabilities of individuals with disabilities, challenging misconceptions and promoti...

Okay, I’m going to be straight with you. Having a special-needs person in your family is a blessing, but it is also challenging. I’m not going to sugarcoat it. IT IS A CHALLENGE, but also quite beautiful.  There are moments when your faith would be skyrocketing- you believe that anything is possible- there are also moments when things are going downhill and you wonder if any God is listening- even though that big man has been providing a lot for you. I started my sibling support group “Your Safe Space” because of one thing and that’s support.  “it takes a village to raise a child with autism” My parents are lucky that they have me and my wonderful sister to assist in the home and also the upbringing of Tobi. Unfortunately, it’s not like that in other homes. In some homes, siblings run away because of various reasons- depression, lack of care, fear, and rejection.  You cannot blame them. Although, there is always the choice to stay- it’s not always clear to many people. Do...

  Why is it very important to empower voices for Autism? There it is! Gt Bank has done it againnnn… It’s one thing when you’re doing everything you can to be aware of a neurodevelopmental disorder, it’s another to make sure others can be aware.  This is my fifth year attending the GT bank Autism conference.  Check out the past year’s post:  Creating a community to Awe-Tism Advocates And every year I go, I am so empowered and  also filled with hope. Hundreds of people attend to know more about autism, to find ways how they can help their children or students. This year’s theme focuses on inspiring confidence in individuals with autism to reach their full potential in their preferred sector, whether art or music.  I’ll start with the dance drama which was… Amazing! Mind you, I’m going to be using that term a lot. The actor in the stage play was a very talented photographer. The moral of the riveting story was that people would always try to take credit for wh...

How many of you have taken the time to learn about the sign language? Of course, you may think “ Why on earth should I learn sign language?” Of what use is it to me? Especially since I have no one close to me who is deafmute or hearing impaired. You should know one thing. It doesn’t matter. My mom says something all the time- no knowledge is lost . Things we have all learnt come back to us one way or the other. Sometime in January, I took a course on sign language (ASL)  and got a certificate. It seemed difficult that someone could understand the gestures, but these things take time. I learnt sign language because there was a girl who approached me during the GT Bank annual autism program last year and needed to find out something. I was so lost on what to do and then she typed on her phone “I can’t hear” I was mortified that I couldn’t understand. I had to search for someone who could communicate effectively with her. I didn’t know if she was born that way but things happen. Remem...